COVID-19 Resources for Self-Advocates
Here are some great resources made by and for people with developmental disabilities about COVID-19.
Click on the underlined words to see the resources:
Informational Video on COVID-19
Learn all about COVID-19 in plain language. Made by Rooted in Rights in collaboration with Autistic Self Advocacy Network.
Video Series – Critical COVID Information for Self-Advocates
Four-part video series from English- and Spanish-speaking self-advocates giving critical COVID information. Produced by California DD Council.
- Episode 1: How to Stay Healthy
- Episode 2: What Should I Do If I Think I’m Sick?
- Episode 3: What I Should Do If I Get Sick
- Episode 4: What To Do If a Caregiver or a Family Member Gets Sick
- Episodio 1: Cómo mantenerse saludable
- Episodio 2: Lo que debo hacer si creo que estoy enfermo:
- Episodio 3: Lo que debo hacer si estoy enfermo
- Episodio 4: Lo que debo hacer si mi familiar o persona que me cuida se enferma
New Toolkit – A Self-Advocate’s Guide to COVID-19
Below you can download any of the eight parts or the entire toolkit.
- Part 1: Basic Covid-19 Information By And For People With Disabilities
- Part 2: Tips For Working With Support Staff During Covid-19
- Part 3: Sample Advocacy Letter About Patients with Intellectual Disabilities Having a Support Person With Them When in the Hospital
- Part 4: COVID-19 Medical Information Form for People With Disabilities
- Part 5: How People On SSI And SSDI Get A Stimulus Check
- Part 6: Getting Unemployment Benefits During the Coronavirus Emergency
- Part 7: Developmental Services During the Coronavirus Outbreak
- Part 8: Coronavirus Plain Language Glossary or Words To Know
- You can also download the entire toolkit by clicking here
Because of Coronavirus most hospitals are not allowing visitors. New York self-advocates and families spoke up and got hospitals to allow patients with intellectual and developmental disabilities to have a support person with them when in the ER or staying in a hospital.
- New York Tips: Dealing with Hospitals during COVID-19
- New York Tips: What to Say to Protect Your Rights in the Hospital
- A Sample Advocacy letter written by Vermont Self-Advocates
- Tips On How To Advocate For Changes To COVID 19 Hospital Visitation & Support Policies In Your State
Plain Language Information on COVID-19 (in 11 languages)
A basic eight-page booklet about the Coronavirus written by and for people with developmental disabilities. It focuses on “need to know” information (not “nice to know” information). Our goal is to keep people with disabilities healthy during this national crisis
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